For nearly thirty years I have been battling a variety of symptoms with fatigue and pain being the most familiar 'friends.' Occasionally I've had the 'butterfly rash' of lupus with patchy rashes on my elbows; sores in my mouth; mild fevers; easy bruising; difficulty swallowing; terrific abdominal cramping (across my diaphragm and below); allergic reactions; and so on. I decided to put this page together for myself, so that I could find information quickly when I need it and so that I could send friends and family to those sources as well.I have an autoimmune disorder of some kind that is 'not yet diagnosed.' I have a positive Rheumatoid Factor but a negative ANA. My sed rate is always elevated, the level varies. I was told in 1994 that research was still ongoing and that tests for several different conditions were still 'in the realm of clinical research' and that I would not likely know definitely for 5 - 10 years what was wrong with me. A very frustrating situation indeed.
Essentially, I was told that, on the balance of probabilities, I most likely had UCTD or MCTD (Undifferentiated or Mixed Connective Tissue Disease) or Chronic Fatigue Syndrome.
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